A CAMPAIGNING granddad has raised £1,200 to help his grandson, who has one of the rarest conditions in the world.
Mick McCallister decided to collect among his work colleagues on behalf of two-year-old Adam Butterfield, from Peterlee, who has Emanuel Syndrome, a chromosome abnormality.
Adam’s mum Nicola McAllister, 34, said: “We are really thankful for their generosity.
“The colleagues he collected from worked for Cordell, Hertel, Cavendish Northern and they all worked on the BIL project at Lucite Billingham Works.”
She said the donations included more than £200 from one worker called Terry Hill, who did a sponsored walk.”
More money is expected to come in later this week when family friend and former neighbour Arthur Snowdon, 62, has his beard shaved off, which he has had for 42 years.
The retired Hartlepool bus driver, who is married to Maureen Snowdon, 57, has so far raised around £100. Anyone who would like to support Arthur can contact him on 07983201659.
Nicola has to give her son his weekly dose of the antibody immunoglobulin. It tops up his system sufficiently to fight off the numerous health scares which have so far seen him rushed into hospital up to 12 times a year
Nicola and Adam’s dad, John Butterfield, 38, were told their son could suffer from heart seizures, kidney failure, asphyxiation, severe mental health problems and an inability to walk or talk.
The family’s Gloucester Place home in Peterlee needs altering to include a lift that will run from the ground floor to Adam’s bedroom.
And while that money has been covered through a grant, there is still the cost of preparing Adam’s sensory room.
Anyone interested in supporting the family’s fundraising campaign can contact Nicola on 07977125779.