Dozens join walk for inspiring Hartlepool teenager Ellie-Mae

Family and friends of Ellie-Mae Morgan pictured before taking part in the charity walk from the Maritime Experience to Seaton Carew.

Family and friends of Ellie-Mae Morgan pictured before taking part in the charity walk from the Maritime Experience to Seaton Carew.

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DOZENS of family and friends of an inspiring teenager who suffers from a life-limiting genetic disorder for which there is no cure took part in a charity walk.

Ellie-Mae Morgan, 14, is one of only about 100 young people in the UK who has a condition called Juvenile Huntingdon’s Disease and tragically has a life expectancy of between five and 10 years.

Money from the sponsored walk, which took place from the Hartlepool Maritime Experience car park to the clock tower at Seaton Carew, is going towards the family helping to pay for a hydrotherapy pool at home.

Around 35 people of all ages took part in the sponsored walk and the money raised is still being totted up.

The walk was organised by family friends Lisa Trowsdale and her sister, Emma Trowsdale.

Lisa, 38, from the Rift House area, said: “We didn’t have as many people as we would have hoped but it was still a good number and the total raised is still being counted.”

Meanwhile, Boombox Disco is helping to boost the total with collection tins at functions they are doing over the coming weeks.

Ellie has rapidly deteriorated since she was diagnosed by Newcastle’s Centre for Life in March last year and she is now totally dependant on parents Sam Morgan and Richard Carter and cannot walk unaided.