PEOPLE have the chance to support a town youngster suffering from a rare bone disorder at upcoming fundraising events.
The race is on to find £120,000 by February next year to continue promising research helping sufferers of Fibrodysplasia Ossificans Progressiva (FOP).
Jasmine Sanderson was just 19-months-old when she was diagnosed with the condition, which affects just one in two million people.
The rare condition causes bones to grow over tendons, ligaments, joints and muscles and the growths can lock into place at any point.
It appeared there was light at the end of the tunnel as medics revealed they were just two years away from a clinical drugs trial but funds have now run out.
The loving family of Jasmine, along with families of a handful of other sufferers in the country are organising fundraisers to raise the amount in the next 10 months.
Jasmine’s mum and dad, Kelly, 33, and Ian, 38, as well as family and friends, are planning a walk up Roseberry Topping and Captain Cook’s monument, in North Yorkshire, on Easter Sunday.
The walk will get underway at 11am and Kelly and Ian, a welder, are urging people to get sponsored and go along and enjoy the day.
Kelly, a full time childminder who is also mum of Sienna, seven, and lives with the family in the King Oswy area of Hartlepool, said: “For us it’s just a matter of raising as much money as we can.
“They have done a brilliant job researching at Oxford University and we need to raise enough money to keep that going.”
Kelly and Ian realise it is a big ask to help to raise £120,000. The most raised in one year before now is £36,000.
But they are also organising a fundraising event at Hartlepool Workingmen’s Club, in King Oswy Drive, later this year.
The event isn’t taking place until Friday, August 3, but any businesses or individuals who are interested in donating prizes for raffles can contact Kelly now.
Anyone who is interested in supporting Jasmine or taking part in the walk next week should contact Kelly on 07989 531914.