Hartlepool family organises charity night to help other sufferers of genetic disease

Sharon Henry and her daugter Zoe Pelling are promoting a Neurofibromatosis charity night.
Sharon Henry and her daugter Zoe Pelling are promoting a Neurofibromatosis charity night.

A BRAVE mum and daughter who are battling a severe debilitating condition are organising a charity night to help other sufferers.

Sharon Henry and her daughter Zoe Pelling are arranging a fundraising event to help other people affected by Neurofibromatosis (NF), a genetic disease which sees their bodies covered in painful tumours.

The Hope for NF night takes place from 7pm on Saturday, October 4 at the Hillcarter Hotel, in Church Street, Hartlepool.

A highlight will be an X Factor-style singing competition, where the winner will get their track recorded and played on Radio Hartlepool.

Judges of the competition will be Dawn McManus from Red Dreams, Manchester-based singer songwriter David Bulley, medium Steven Veart and a Radio Hartlepool representative.

Sharon, 49, of Lynn Street, Hartlepool, who has a partner called Bob Sales, 50, had to have her right leg amputated from below the knee due to her condition.

The mum-of-three said: “We are trying to get enough funds raised for all the families affected all over the country by NF.

“Other sufferers are coming from all over the country, but it’s open to everyone.
“The night is not about the condition, it’s about having fun.
“A lot of people with the condition like singing, and it boosts their confidence.”

There will also be a raffle with prizes including a long weekend for six in a Derbyshire cottage, a PC tablet, a paintball experience for 10 people, as well as a buffet, and hampers.

Tickets are £10 or four can be obtained for £35, while raffle tickets are £1.

Tickets can be obtained from the Hillcarter reception or from Sharon on (01429) 863110.

There will also be a collection on the night for five-year-old Missy Russell, from Middlesbrough, who has a rare and incurable brain condition.

Missy and her mum and brother are expected to make an appearance on the night.