Inspired to help support brave Jasmine

From left,  Lisa O'Leary, Courtney Lowery, Rebecca Ward and Shannon Swift. Below, Jasmine with her mum Kelly
From left, Lisa O'Leary, Courtney Lowery, Rebecca Ward and Shannon Swift. Below, Jasmine with her mum Kelly

A GROUP of kind pals couldn’t decide what to do to support a schoolgirl suffering with a rare disorder – so organised seven weeks worth of quirky fundraisers.

Courtney Lowery, Shannon Swift, Lisa O’Leary and Rebecca Ward, all 14, were inspired to start a fundraising campaign when the mum of Jasmine Sanderson visited Dyke House Sports and Technology College to explain Fibrodysplasia Ossificans Progressiva (FOP).

Jasmine Sanderson, 5, suffers from a rare bone disorder and her parents are fundraising for national treatment for the condition. Jasmine is pictured with her mam, Kelly.

Jasmine Sanderson, 5, suffers from a rare bone disorder and her parents are fundraising for national treatment for the condition. Jasmine is pictured with her mam, Kelly.

Jasmine was just 19 months old when she was diagnosed with the condition, which causes bones to grow over tendons, ligaments, joints and muscles around the body which can lock into place at any time.

As previously reported in the Mail, Jasmine’s family and the families of other sufferers around the country are on a fundraising drive to raise £120,000, which is needed by the end of January next year to continue promising research into the condition.

And now the kindhearted Dyke House students are doing their bit with daily fundraising activities throughout November and half of December.

A sponsored silence, a day of wearing clothes back to front, a conga challenge, busking on the streets of Hartlepool and a flash mob dance are just some of the activities that will keep the girls busy over the next six weeks.

Add to that list a week-long chocolate ban, cake sales, car washing, walking dogs and the small matter of sitting in a bath of beans.

The constant fundraising activities will come to an end of December 19 when the girls plan to hand all of the money they have raised over to Jasmine, who celebrated her sixth birthday last Thursday.

Courtney, who lives in the Dyke House area of Hartlepool with her parents, Darren, 36, and Karen, 41, and older sisters Hollie, 18, and Chelsea, 21, said: “Jasmine’s mum came into school and told us about the condition.

“Straight away we decided we wanted to do some fundraising, but we couldn’t decide what to do so we just thought we would do everything we could think of.

“We are just going to try and raise as much money as we can.”

Jasmine’s mum, Kelly, 34, a childminder who lives in the King Oswy area of Hartlepool with husband, Ian, 38, Jasmine and her older sister Sienna, seven, said: “This is absolutely brilliant what the girls are doing, it’s lovely.

“I haven’t been going out and asking these people to do these things, they just get in touch and start it themselves and it’s fantastic.”

The awareness of the condition will be raised even more when it features on a documentary, called the Human Mannequin, on Channel 4 on Thursday at 9pm.

To read more about the challenges which the girls are taking on and to donate or sponsor them visit www.facebook.com/FopDiseaseCharity.

To find out more about the condition go to www.fopaction.co.uk.