FAMILY and friends of an inspiring teenager who suffers from a life limiting genetic disorder for which there is no cure are taking part in a charity walk today.
Ellie-Mae Morgan, 14, is one of only about 100 young people in the UK who has a condition called Juvenile Huntingdon’s Disease and tragically has a life expectancy of between five and 10 years.
Money from the sponsored walk, which takes place today at 1pm from the Hartlepool Maritime Experience car park and then along to the clock tower at Seaton Carew, will go towards the family helping to pay for a hydrotherapy pool at home.
It has been organised by family friends Lisa Trowsdale and her sister, Emma Trowsdale.
Lisa, 38 from the Rift House area, said: “Everybody is welcome to join in, the more the merrier.
“So far we have about 100 taking part and raising money.”
Ellie has sadly rapidly deteriorated since she was diagnosed by Newcastle’s Centre for Life in March last year and she is now totally dependant on parents Sam Morgan and Richard Carter and cannot walk unaided.
To sponsor the walk call Lisa on 07522512845.