A YOUNGSTER fighting an extremely rare condition is set to cheer his football heroes on this weekend.
Five-year-old Adam Butterfield is one of only around a dozen people in the UK with the chromosome abnormality Emmanuel Syndrome.
His condition confines him to a wheelchair as he cannot walk unaided and doctors say he could suffer a string of health problems including heart seizures, kidney failure, and asphyxiation.
Adam and dad John Butterfield, 40, will be among 40,000 Sunderland supporters at the Capital One cup final against Manchester City at Wembley Stadium on Sunday.
Adam has a season ticket and goes with dad John as his carer.
Mum Nicola, of Acre Rigg, Peterlee, said: “Adam thinks it is great, especially when the mascots come over to say hello to him at the matches.
“Getting to the final is one of those rare events. It is all John has talked about since they got their tickets.
“It will be a long day for Adam, but I’m sure he will enjoy it – especially if Sunderland win.”
Emmanuel Syndrome is so rare there are only 200 cases in the world.
Adam, who attends Howletch Primary School in Peterlee, underwent an operation last year to try and boost his mobility.
He has also had botox injections in his thighs to help Adam stretch his legs and has regular physiotherapy.
Nicola added: “He is doing really well at the moment and has been really healthy for the last year or so.
“He is still not walking but we are working on it.”
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