A YOUNGSTER battling a rare bone disorder took centre stage as she joined talented performers in raising more than £1,000 to help treat her condition.
Jasmine Sanderson, five, is one of just a handful of people in the country suffering with Fibrodysplasia Ossificans Progressiva (FOP), a condition which causes bones to grow over tendons, ligaments, joints and muscles.
Despite battling the elements, brave Jasmine, who is a pupil at Hartlepool’s St John Vianney RC Primary School, does her very best to get on with normality and recently joined the Northern School of Music, based in the town’s Church Square.
And the kind-hearted group of performers at the school joined Jasmine on stage at a recent event helping the youngster’s dedicated family who are in the middle of a fundraising drive to raise an almighty £120,000 by February next year.
Jasmine’s mum and dad, Kelly, 33, a childminder, and Ian, 38, a welder, who are also parents of Sienna, seven, need to raise the money with the help of other fundraisers nationwide to continue promising research which medics revealed was just two years short of a possible clinical drugs trial before funding ran out.
The dedicated pair have so far raised around £20,000 with the help of family, friends and generous fundraisers and that was boosted even more by the Northern School of Music event, which raised £1,159.
Kelly, who lives with the family in the King Oswy area of Hartlepool, said: “It was a little bit emotional to see Jasmine up there on stage.
“She is a little bit shy normally but she didn’t let it faze her and she did great.”
Kelly thanked all of the other youngsters at the school for welcoming Jasmine and being so kind.
She was also full of praise for vocal teacher Toni Parker-Harvey who organised the event.
She added: “We are so grateful to Toni and we want to say a big thank you.
“It was a fantastic evening and to raise as much as we did is brilliant.”
Kelly and Ian also thanked family friend Tommy Shearer for another donation which has boosted their efforts.
Tommy works for energy company Conoco Phillips, which donated £500 in support of Jasmine and fellow FOP sufferers.
To find out more about FOP and to support Jasmine visit www.fopaction.co.uk