Supporters brave cold to raise cash for Hartlepool teen with rare condition

The 1 Heart 1 Mind 1 Future group take part in a sponsored bike ride and walk along the Headland in aid of Georgia Hart fund. Pic: Tom Banks.

The 1 Heart 1 Mind 1 Future group take part in a sponsored bike ride and walk along the Headland in aid of Georgia Hart fund. Pic: Tom Banks.

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Supporters of a Hartlepool teenager living with a rare condition braved chilly and windswept conditions to help send her to America for drug trials.

People of all ages, including youngsters with disabilities, took part in a sponsored bike ride and walk along the Headland.

The sponsored bike ride and walk along the Headland in aid of the Georgia Hart fund. Pic: Tom Banks.

The sponsored bike ride and walk along the Headland in aid of the Georgia Hart fund. Pic: Tom Banks.

They raised around £300 towards a fund for 18-year-old Georgia Hart who has started a new drug trial for the potentially life-threatening condition Freidreich’s Ataxia (FA).

The condition attacks and damages the central nervous system and affects Georgia’s balance, mobility and heart.

Yesterday’s event for the Save a Hart fund – to pay for trips to a specialist centre in America – was organised by Hartlepool disability support group 1 Heart 1 Mind 1 Future.

Christine Fewster, of the group, said: “About 16 people aged from three-years-old right up to 45 took part.

The 1 Heart 1 Mind 1 Future group take part in a sponsored bike ride and walk along the Headland in aid of Georgia Hart fund. Picture: TOM BANKS

The 1 Heart 1 Mind 1 Future group take part in a sponsored bike ride and walk along the Headland in aid of Georgia Hart fund. Picture: TOM BANKS

“It was extremely challenging for some of the kids that took part. They had to stop a few times because they have muscular problems and with how cold it was on the seafront.

“But I’m very proud of them and everyone who took part. It was lovely to see that they were willing to do it for Georgia.”

The group decided to help Georgia as a thank you for her previously raising money and support for the parent-led group for families of children with additional needs.

Georgia, of Serpentine Road, Hartlepool, also joined in the ride along Marine Drive on a specially adapted bike with friend Sophie Allott.

Mum Bev Hart said: “It was a great event and we are very grateful to everyone who took part. Parents, kids and siblings all joined in.”

The Save a Hart fund aims to raise around £25,000 to fund Georgia’s regular trips to the only centre of excellence in the world for her condition, in Philadelphia, over the next six months.

Supporters can donate through the website www.shareagift.com/Pages1323
The campaign is also on Facebook under Save A Hart.