A CARER is looking to raise vital funds for a national association that supports people living with a rare condition.
Sam Gretton is calling on Hartlepool folk to support families affected by genetic disorder tuberous sclerosis complex (TSC) through her tea and scones campaign.
Sam has worked full time as a personal assistant to Billy Ward for 12 years and is passionate about raising awareness and funds for the Tuberous Sclerosis Association (TSA).
TSC is a genetic disorder that causes growths to form in different organs, primarily in the brain, eyes, heart, kidney, skin and lungs and some people experience epilepsy, developmental delay, autism and challenging behaviour. There is no cure but, most people have a normal life span.
Billy, 31, from the Rift House area, has been severely affected and has a severe learning disability, epilepsy, autism and no speech but his family say he is “very happy and content”.
Sam’s Tea and Scones event takes place Wednesday, May 14 between 1pm and 4pm at Hartlepool Special Needs Support Groups Resource Centre, in Park Road.
There will also be a raffle, tombola and cake stall.
The event will coincide with TSC Awareness Week, which runs from May 12 to 18, with funds being raised for the Tuberous Sclerosis Association (TSA).
Sam said: “I see every day the impact TSC can have on Billy, especially the seizures, that can some days take Billy up to three days to recover from. Billy is an amazing young man who lights up the room with his smiles and very cheeky laughter, he may not talk, but he knows what he wants and how to get it.”
Dr Jayne Spink, TSA chief executive, said: “We owe an enormous debt of gratitude to our supporters like Sam whose efforts enable the TSA to continue with its work.”
For information visit www.tuberous-sclerosis.org or to leave a donation to the TSA visit www.justgiving.com/sam-gretton2014