Thousand ways to help Luke

Luke Malcolmson
Luke Malcolmson

KIND-hearted children raised £1,000 for a muscular dystrophy charity after discovering the brother of one of their pals has the condition.

Pupils at Sacred Heart Primary School, in Hart Lane, Hartlepool, have been learning all about the illness and holding fundraisers as poorly Luke Malcolmson’s five-year-old brother Matthew goes to the school.

Luke with his mum, Jayne Malcolmson and Sacred Heart Primary School Year 6 teacher Laura O'Neil and members of the choir

Luke with his mum, Jayne Malcolmson and Sacred Heart Primary School Year 6 teacher Laura O'Neil and members of the choir

Little Luke, who is two next month, appeared in the Mail in November as he has a rare muscular condition that affects just one in 3,500 boys born in the UK.

Duchenne muscular dystrophy could leave him unable to walk by the time he is just 10.

But he has the support of a loving family, warm-hearted friends and now a whole school as he tries to lead as normal a life as possible.

Sacred Heart pupils learned all about muscular dystrophy and had a chance to meet Luke when he visited the school with his mum to say thanks for all their fundraising.

His mum Jayne, 37, who works at Pagan & McQuade opticians, in Hartlepool, said: “We are very grateful and it was very kind of them to do it. We do appreciate the support and that the school has organised all of this.

“Luke really enjoyed going into the school and getting all the attention.

“I think they all loved him and thought he was very cute, which he is!”

Duchenne muscular dystrophy causes muscles to progressively weaken because the muscle cells break down and are gradually lost, and means Luke will find himself unable to run and jump like his friends.

But his family is staying as positive as they can as Luke’s condition was discovered early and they have hope that there will be developments over the next few years with treatments.

Matthew’s school and his friends are also doing their bit by choosing the Action Duchenne charity, which carries out research into the disease and treatments, to receive £1,000.

Youngsters made a Christmas carol CD that they sold to their families and friends, held a Christmas fair and had a wishing well to raise the cash.

Alice Relton, 11, said: “We have learnt about Action Duchenne and know that the illness affects many boys and it can be very serious. We are very happy that we can help.”

Bridie Armstrong, nine, added: “I was happy to see Luke. It was fun to see him, he’s really cute.”

Luke lives in Glentower Grove, in Seaton Carew, with his mum, dad Neil, 38, a self-employed joiner, Matthew and two-and-a-half-year-old brother Samuel.