TICKETS for a fundraising event supporting a Hartlepool schoolgirl battling a rare muscular wasting disease are selling well– but people still have chance to get involved.
As previously featured in the Hartlepool Mail, adorable four-year-old Tilly McDonough suffers with Duchenne Muscular Dystrophy, a condition which normally only affects one in 3,500 boys and is even rarer in girls.
Experts predict Tilly is one of only 50 girls in the country to be suffering with Duchenne - which results in a life expectancy of early 20s at the very longest.
Her mum, Michelle, 32, says by the time Tilly is 11 she will no longer be able to walk and only two or three years later she will lose the ability to use her arms.
But proud Michelle says Tilly gets on with her life without any complaints and the youngster and her family are set to enjoy a holiday of their choice thanks to kindhearted fundraising organisers.
Charlie Featherstone, 46, who runs North East Tang Soo Do Family of Martial Arts and Fitness, based in the town, organised the event which will be held at Belle Vue Way Social Club, in Kendal Road, Hartlepool, this Friday, May 25 from 7.30pm.
Rock band Dry Ice will perform live at the event,
Charlie, 46, who lives in the Rift House area of Hartlepool with wife Diane, 43, a Slimming World consultant, said: “Tickets have been selling well and the band always has a big following no matter where they play.”
Charlie doesn’t have a target for how much he wants to raise on the night but said all of the money will be handed to Tilly and her family.
Tilly’s mum, Michelle, who lives in Bruntoft Avenue, in the town, with husband Christopher, 42, and their children Tilly and eight-year-old Caitlin, said: “We are very grateful. We can’t thank Charlie enough for organising the event.
Tickets, priced at £3 can be bought on the door or in advance by calling Charlie on 07974169229.