Walk in support of young Jasmine

Generous fundraisers who completed a walk up Roseberry Topping and Captain Cook's monument in support of Jasmine Sanderson.
Generous fundraisers who completed a walk up Roseberry Topping and Captain Cook's monument in support of Jasmine Sanderson.

KIND-HEARTED fundraisers climbed high during a challenge in support of a schoolgirl suffering from a rare bone disorder.

Family and friends of young Jasmine Sanderson walked more than seven miles, taking in Roseberry Topping and Captain Cook’s Monument, in North Yorkshire.

Jasmine Sanderson, 5, suffers from a rare bone disorder and her parents are fundraising for national treatment for the condition. Jasmine is pictured with her mam, Kelly.

Jasmine Sanderson, 5, suffers from a rare bone disorder and her parents are fundraising for national treatment for the condition. Jasmine is pictured with her mam, Kelly.

The challenge was organised as part of an ongoing fundraising drive to support research which aims to help sufferers with Fibrodysplasia Ossificans Progressiva (FOP).

Jasmine is one of just a handful of people in the country to suffer with the condition which causes bones to grow over tendons, ligaments, joints and muscles. The growths can lock into place at any time.

However the families of sufferers are now in a race against time to find £120,000 before February next year after the research was cut short due to a lack of funds.

The news of the cash shortage was a real blow for sufferers and medics who had revealed they were just two years away from a possible clinical drugs trial.

Jasmine’s mum and dad, Kelly, 33, and Ian, 38, have since organised and took part in a number of fundraisers, their latest effort being the challenging walk.

With the help of fellow fundraisers, the family helped to raise more than £3,000 for the cause to the delight of Kelly.

The childminder, who is also a mum of Sienna, seven, and lives in the King Oswy area of Hartlepool, said: “We all had a brilliant day.

“We were quite shocked because there was still quite a lot of snow up there and it was really slippy at some points which made it a bit tricky.

“But it was good fun and I would like to say a great big thank you to everyone who came along.”

Kelly and Ian have received other cash boosts in recent weeks.

Kelly’s cousin David Naylor and his wife Becky renewed their wedding vows, but instead of getting presents they asked people to donate to the cause.

Their marketing and web design firm, Bronco, also handed over £1,000.

Kelly also thanked Heerema, the fabrications firm based in Greenland Road, Hartlepool, where Ian works, after a £250 donation in support of Jasmine.

To support Jasmine and fellow FOP sufferers, visit www.fopaction.co.uk.