A MUM whose son has battled a rare skull condition has helped to launch a national cause which she hopes will go viral.
Diane Hender, the mum of one-year-old Dylan Davis, is part of a group which battles to help children with a condition called craniosynostosis.
Dylan has the condition which causes sections of the skull to be fused together, preventing it from expanding and leading to pressure on the sufferer’s growing brain.
The condition affects just one in every 3,000 babies.
Hartlepool woman Diane said: “Our support group, along with another support group, Craino Ribbons, is running an awareness and fundraising campaign called Crack it for Cranio. We are aiming for this to go viral, much like the ALS ice bucket challenge did.
“What we are proposing to do is to get people to ‘crack it for Cranio’, by either cracking a joke, cracking an egg over their head (chocolate or real) or both and then mentioning the challenge (#crackitforcranio).”
What we are proposing to do is to get people to ‘crack it for Cranio’, by either cracking a joke, cracking an egg over their head (chocolate or real) or both and then mentioning the challenge.Diane Hender
She said the challenge was being done to raise awareness of Craniosynostosis and Diane added: “We are asking that these videos are posted on social media, making a small donation to one of the cranio facial specialist hospitals.”
Dylan was born at the University Hospital of North Tees in Stockton in May 2013, weighing a healthy 7lb 7oz, after his mum’s normal pregnancy.
But the illness was picked up almost immediately by a midwife, who noticed Dylan had an abnormal shape to his head.
The tot was given x-rays and scans and eventually, at two weeks old, he was diagnosed with craniosynostosis.
He had two fused bones in his head and doctors transferred Dylan to specialists at the Alder Hey Children’s Hospital, in Liverpool, where it was discovered during surgery that Dylan was also blind in his right eye.
Then, in January this year, he was in the operating theatre for a mammoth 10 hours so surgeons could remove the front part of the skull, to remodel the shape of his head,
Dylan returned to Alder Hey last month for his eight-week post-op review and experts told Diane no more surgery was needed in the immediate future.
Now, Diane is hoping to help the crack it for Cranio challenge to go viral.
She said: “We are asking people to donate to their local specialist centre for Cranio. Nearest to us is Alder Hey, but there is also Birimingham Children’s Hospital, Great Ormond Street and John Radcliffe in Oxford.”
To donate to Alder Hey, people can either Text GIFT ALDER to 70755 (min £5 donation plus standard charge), call 0333 2223888, or visit www.alderheycharity.