Youngsters learn about rare condition at fundraiser

The Footprints Nursery on Tees Street in Hartlepool held a cake baking session for the youngsters to help raise awareness of Ehlers-Dahnlos syndrome, which the nursery's business manager, Suzi Yeniceri, who is pictured receiving a cake from Lyla O'Connor, 6, while her pals Isaac Craggs, Finley Mulgrew, Lily Riley, Lucie Wilkinson and Jemima Craggs look on.

The Footprints Nursery on Tees Street in Hartlepool held a cake baking session for the youngsters to help raise awareness of Ehlers-Dahnlos syndrome, which the nursery's business manager, Suzi Yeniceri, who is pictured receiving a cake from Lyla O'Connor, 6, while her pals Isaac Craggs, Finley Mulgrew, Lily Riley, Lucie Wilkinson and Jemima Craggs look on.

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YOUNGSTERS have been learning about a rare genetic condition suffered by two bosses at their nursery while boosting funds at the same time.

Around 70 youngsters aged six months to eight years old who attend Footprints day nursery in Tees Street, Hartlepool, took part in a week of awareness-raising and fund-boosting activities in aid of Ehlers-Danlos Syndrome (EDS).

Both nursery owner Sharon Birch and her three children, and its business manager Suzie Yeniceri suffer from the condition, which can leave sufferers with broken bones, severe scars and bruises.

EDS is an hereditary condition that affects only one in 100,000 people. The connective tissue or glue that holds the bones and body parts in place are faulty, leaving the skin and internal tissue extremely stretchy, fragile and the sufferers prone to joint problems, breaks, bruising and other ailments.

Last week, the nursery took part in a series of activities and raised around £775.

These included the babies taking part in a messy play session and being sponsored to see how many pictures they would create, the toddlers taking part in messy play and parents being given the chance to take home a photo of what their children made and the ‘tweenies’ being sponsored to build the tallest tower out of blocks.

Members of the nursery’s holiday club also raised funds by taking part in a baking session and the pre-school children took part in a sponsored assault course.

Sharon, who is a writer, also boosted funds by taking part in a 12-hour sponsored writathon.

Sharon, who is recovering from an operation, said: “It’s good to be able to raise awareness for this sort of condition, there is not much known about it.”

Deputy nursery manager Lisa Henderson said: “I’d like to thank the parents for their continued support. It’s nice our parents raised a lot more money for us, with the condition being so close to home.”