I’m appealing to readers to get involved and show their support for Harrison’s Fund’s Blue Hair Day on June 26.
The aim of the day is to increase awareness of Duchenne Muscular Dystrophy and raise money for researchers.
They are working on finding a cure for children who will not have a future due to their prognosis.
The money raised will fund a research physiotherapist.
This post will support and evaluate patients who are on Duchenne clinical trials, helping the researchers to assess the success of potential treatments.
Duchenne is a neuromuscular condition caused by the lack of a protein called dystrophin and is 100% fatal.
One in 3,500 boys is born with Duchenne muscular dystrophy in the United Kingdom every year.
Their average life span is just 20 years.
Both of my young sons were diagnosed on June 26, 2014.
This campaign is a positive way to mark this anniversary as a day that we remember for brighter, more hopeful reasons.
I am passionate about highlighting this cause and drawing attention to this lesser known disease.
It can be cured if enough money is put into the hands of the best scientists.
We’re asking everyone to support the campaign by:
Donning blue wigs and asking your friends, family members and colleagues to sponsor you.
Do something fun wearing your wig and raise money your own way.
Speak to your friends and family members and get them to support the campaign and Harrison’s Fund, and be part of the search for a cure.
Diseases touch every single person.
We’re asking everyone to take a moment to read about Blue Hair Day and get involved.
Visit https://harrisonsfund.com/blue-hair-day to find out more.