A masked ball fundraising night in memory of a much-loved Hartlepool teenager will help people with the same condition have healthy children.
The second memorial charity night is being held in memory of Ellie-Mae Morgan, who died of Huntington’s Disease aged just 16.
We are just trying to raise as much money as we can for a good cause and what better way to do that than a party in Ellie-Mae’s memoryAimee Humphries
It is being organised Ellie-Mae’s family and aims to raise money for a great cause.
Proceeds will go to Phil’s Kids that helps people with the Huntington’s Disease gene to have a type of IVF treatment to prevent them passing the condition on to their children.
Aimee Humphries, Ellie-Mae’s sister, said: “We are just trying to raise as much money as we can for a good cause and what better way to do that than a party in Ellie-Mae’s memory.
“Last year we got a good turnout and raised over £2,500, and are hoping to do similar again.
“We have got lots of good raffle prizes, a DJ and buffet, so hopefully it will be a good night.”
Courageous Ellie-Mae, who went to High Tunstall College of Science, passed away in October 2014 after being diagnosed with Huntington’s Disease in March 2012.
The hereditary disorder damages nerves in the brain and it gradually affects speech, mobility and co-ordination. Ellie-Mae’s family have worked to raise awareness of the condition.
Mum Sam Carter said: “It is what pushes us on and keeps us going as a family. Huntington’s is not as rare now as people think as more and more people are getting tested.”
Huntington’s Disease has recently featured in a storyline in BBC drama Casualty.
Speaking of Phil’s Kids, Sam added: “If, out of all of this, we can help people with Huntington’s Disease in Ellie’s name to have a healthy baby, it would be fantastic.”
The Masquerade Evening in memory of Ellie-Mae is on Friday, May 13, at the Belle Vue Social Club at 7pm.
Tickets are £5 in advance from Aimee on 07896 826004 or pay on the door.