Tea and scones at Hartlepool centre help net £1,500 for Tuberous Sclerosis Association

Billy Ward with his personal assistant Sam Gretton
Billy Ward with his personal assistant Sam Gretton

A TEA and scones event aimed at raising vital funds for people living with a rare condition has raked in £1,500.

Carer Sam Gretton, who has been personal assistant to Billy Ward for 12 years, organised the event to help support families affected by genetic disorder tuberous sclerosis complex (TSC).

Sam has known Billy and his mum Sue and dad Kev for 20 years and all of the money raised is going to the Tuberous Sclerosis Association.

Sue said: “We’d like to thank all those who attended and all the support we received, which helped raise a staggering £1,500 for the Tuberous Sclerosis Association.

“Having such good family and friends made the afternoon a huge success and we’d like to thank everyone who donated raffle and tombola prizes, baked scones and cakes and helped on the day.

“The kindness and generosity shown was overwhelming and we’d thanks also to the Hartlepool Special Needs Support Group for letting us use their centre.”

Billy, 31, from the Rift House area, has been severely affected and has a severe learning disability, epilepsy, autism and no speech.

Sue added: “I’d like to thank Sam for all her hard work organising the event, her sister in law Christine Readman for all her help and Kevin’s work colleagues for their generosity.”

TSC is a genetic disorder that causes growths to form in different organs, primarily in the brain, eyes, heart, kidney, skin and lungs and some people experience epilepsy, developmental delay, autism and challenging behaviour.

There is no cure but, most people have a normal life span.